TY  - BOOK
AU  - Henley,Ariel
TI  - A face for Picasso: coming of age with Crouzon syndrome 
SN  - 9780374314071
AV  - RD763 .H38 2021
U1  - 617.5/2 23
PY  - 2021///
CY  - New York
PB  - Farrar Straus Giroux
KW  - Henley, Ariel,
KW  - Craniofacial dysostosis
KW  - Patients
KW  - Biography
KW  - Juvenile literature
KW  - Schneider Family Book Award
KW  - Young adult literature
N1  - Includes bibliographical references
N2  - "A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"--; At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket
ER  -